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Real members of myIBSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 search results for "i wish i could tell the truth about this illness but i think that a lot of people dont understand" in Q&A. To see all results and access other features, sign up for free.

Telling New Friends?

A myIBSteam Member asked a question 💭
Aberdeen, UK

Hi, I have recently relocated to another country. How soon do you explain your illness to new friends? I’m going to run out of excuses to meet up with them soon 😳
I also have fibromyalgia so have flare ups with that also,so double the cancellations!

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A myIBSteam Member

I try too tell friends
Many of them don"t get it.

Does Anybody Faint From Pain When Constipated, Stomach Cramps, Before The Great Escape?

A myIBSteam Member asked a question 💭
Pretoria, ZA

Severe stomach cramps when constipated, has anybody faint as result thereof???

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A myIBSteam Member

Close several times

How Do People Manage A Relationship When You Feel Like Crap Most Of The Time

A myIBSteam Member asked a question 💭
Bolton, UK

Look I'm not in a relationship atm but sometimes I feel it would be lovely to find someone just to hold me a say everything will be ok. The sad thing is I'm not sure I could give much back atm. How do you go on when you don't feel great a lot of the time. I don't want to live a lie and pretend everything is ok, I do this enough at work and in front of my friends. Any advice would be appreciated

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A myIBSteam Member

The right person will love you regardless of your gut issues

Has Anyone Else Tried The Low-FODMAP Diet For IBS-C (NOT IBS-D)? If So, How Did It Go For You??

A myIBSteam Member asked a question 💭
Calgary, AB

The diet seems to be really geared towards IBS-D especially from what I can tell. I know when I first tried doing it it helped the bloating, but made everything else worse, because I was following all the low fiber (and often pretty heavy) recipes on Pinterest... not great for constipation or someone whose gut is triggered by heavy foods. Combining the low-FODMAP diet (modified with what I know I can handle based on the reintroduction phase) with a more personally "constipation friendly" diet… read more

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A myIBSteam Member

I have cut off fried foods, carbonated drinks, dairy free, gluten free foods

Food After A Flare

A myIBSteam Member asked a question 💭
Bargoed, UK

once you have had a flare do you eat that day or following day and what do you eat ?
I have no diet as I dunno if anything upsets my stomach I can eat the same things and then some days have a flare cant seem to find a pattern :( but never know what to eat after one usually I go with out food for rest day or following day because to scared to eat :(

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A myIBSteam Member

I aso have just broth, maybe crackers, applesauce for a couple of days after a flare-up. Certainly nothing else. NO milk or dairy.

How To Deal With The Terrible Gas Especially In The Evening. I Use Gas But Just One A Day When I Have The Issue.

A myIBSteam Member asked a question 💭
Orange City, FL

I don't know if I'm eating something that I shouldn't I followed the fodmaps and his best I can no wheat rye or barley very very little sugar once in a while Splenda even though they say no artificial sugar very little bread once or twice a week and that's gluten free and then I get this gas of an evening and I'm like three or four times into the bathroom to pass the gas cuz I'm not sure what's going to happen when I do a small amount of bowel movement just a little bit not diarrhea sometimes I… read more

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A myIBSteam Member

Thankyou, the gastro enterologist did blood work and found a list of things food-wise that I guess I'm allergic to the irritate the stomach right no raw vegetables no fresh fruit no dairy no egg… read more

. Most Days If I Dont Take Immodium At Night For The First Hour I Can Go To The Toilet Up To 7 Times Does Anyone Have This Problem.

A myIBSteam Member asked a question 💭
Pembrokeshire

First thing in the morning if I don't take immodium at night I can go to the loo up to 7 times in the first hour. My doctor reckons this part of the IBS but when your staying at someone's house with only one bathroom it gets a bit embarrassing also we travel a lot and that is the same when your back and for the washroom. Has anyone else experienced this and can they tell me how to cope.

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A myIBSteam Member

I know exactly what you mean and I can relate to almost all you said, I had some horrible embarrassing moments, I have tried different meds, now I am trying to learn more about FODMAP and keeping a… read more

Is There A Bearable Way To Mix Cholestyramine Powder?

A myIBSteam Member asked a question 💭
Woonsocket, RI

I have been taking cholestyramine powder for about 6 months and if you take it you know it is not pleasant. It does not dissolve in liquid and if not mixed up vigorously you are swallowing lumps of orange powder. If there is anyone out there who takes it and has found a halfway bearable way of taking it I would greatly appreciate any advice. It helps so well for me but I want to puke everytime I drink it. What sucks is just about everything bothers me and I NEED to take this medication if I ever… read more

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A myIBSteam Member

I have found so far the best way to take it is to mix it with applesauce. Or, mix with orange or pineapple juice or a Gatorade zero in the blender. Still slightly gritty, but way better than anything… read more

Impacted Bowel

A myIBSteam Member asked a question 💭
Clifford On Canada

I suffer from IBS and unfortunately so does my 26 year old daughter and my 5 year old grandson.We find that food is the biggest trigger.. I was wondering if anyone has had an impacted bowel caused by the foods you have ate? I have had it twice, both times had to be in hospital for hours filled with laxitives, and finally had to have an impaction done which was the worst thing in the world I have gone through and I have gone through a lot. I take Clear lax every day in my tea and when I need it… read more

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A myIBSteam Member

Chinese food and dairy make me have diarrhea.

How Many Of You Have Seen A Specialist For Your IBS?

A myIBSteam Member asked a question 💭
Romford

My old GP diagnosed me 10 years ago with IBS but i never knew i should have seen a specialist until now. I'm just wondering how many more out there haven't seen a specialist

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A myIBSteam Member

I've seen a GI doctor since 2011.